Navigating K–12 with Usher Syndrome: A Student’s Journey and Lessons for Inclusive Support
Join us June 29th at 3 pm EST for a new webinar!
Navigating K–12 with Usher Syndrome:
A Student’s Journey and Lessons for Inclusive Support
CEC Members – Free
Non-Members - $20 + Eventbrite Fee
Group Rate - $200 + Eventbrite Fee
Usher Syndrome presents unique challenges for students and educators, requiring thoughtful planning and collaboration to ensure access and success. This presentation shares the lived experience of a young adult with Usher syndrome, and the professional perspective of Dr. Lacey Long, a specialist in deafblind education. Dr. Long will outline the individualized supports that shaped the student’s K–12 journey, from early interventions to transition planning.
This session emphasizes the importance of proactive planning, family-school collaboration, and leveraging state and national resources. Attendees will leave with practical strategies for integrating braille, self-advocacy, orientation and mobility training, and assistive technology into educational programming for students with Usher Syndrome. By centering both professional and personal perspectives, this presentation offers actionable insights for creating inclusive environments that empower students to thrive.
Learning Objectives:
1. Participants will identify key components of individualized educational programming for students with Usher Syndrome, including braille instruction, self-advocacy skill development, and orientation and mobility training.
2. Participants will analyze the role of collaborative teams and state/national resources (e.g., deafblind projects, Helen Keller National Center, assistive technology programs) in supporting students with Usher Syndrome.
3. Participants will apply strategies for integrating assistive technology and fostering self-determination to enhance access, independence, and successful transitions throughout K–12 education.
Featured Speaker
Lacey Long, Ed.D., Project Director
North Dakota Dual Sensory Project
TSVI, COMS, CATIS